Erin Got Her Button Out!!

Today was a big day for our family (and friends) because Erin got her button out! She's hasn't used it since September. We kept in in through the winter just incase we needed it. She was scheduled to have it removed a few weeks ago, but caught a bad cold so we postponed it until today. When asked about her button, Erin would tell you "Connor, button, all-gone, big girl". What that means was that Dr Connors was taking her button out and because she was a big girl. And she was correct!
She did awesome with the surgery. We got there at 8:00 am and didn't go back until 10:00. There was a great playroom for us to enjoy while we waited. Erin was happy that Mickey was on the TV. I was able to go into the OR with Erin while they
put her to sleep. She did fine and was out in less than a minute. The whole surgery took about 45 minutes. Dr. Connors removed her button and sewed up her abdominal wall, stomach and skin so that she wouldn't have any leaking. All of the stitches are internal and the site looks really good.
The longest part was waiting for her to wake up. We had a visit from one of our favorite nurses Renee who was working today. She stayed with us until Erin was discharged and then we want up to the NICU to see our other 4 primary nurses. It was the first time that they were all working on the same day. I wish we works have gotten a picture with them, but we didn't. It was wonderful to see everyone e and they were all so proud of Erin.
We came home and Erin slept for a few hours. When she woke up she had to go outside to see the flowers daddy had planted. Then she wanted to play, go for a

Walk, help me fill the bird feeder and play some more. She finally went in for some pizza (even though they said to give her soft foods- she was begging and hungry so I gave in). She acted as if she hasn't had surgery at all today. She is truly amazing! We are so proud of Erin and how far she has come.
It was almost 2 years ago to the day that we put the G-tube in. It was a difficult decision and one we didn't make quickly. We/she struggled with bottle feedings, oxygen setting and oral aversion. Here we are two years(and 1 year of feeding therapy) later. You'd never know that she had so many struggles just to eat like a normal baby. And today she begged for pizza, pretzels, yogurt and water all a few hours after surgery. We are so thankful for all of your prayers, support and kind words. They mean so much to us!






Will spent the day with Grandma Melanie. They went to the flower shop and bought flowers. Will insisted that she needed some "lellow" ones. He had to say good- bye to everything as they left the store. They went to grandma's house to drop off the flowers. He had to watch a show in his rocking chair , ate the top piece of bread from a peanut butter sandwich and announced "night-nights" while running to his pack and play. He tried to turn on the music box and climb into bed only to realize he didn't have his blankie. So he ran back through the house (stopped for a drink of water) and was ready to go "home". Upon arriving home, he had to play outside (hide and go seek in the bushes) for an hour and then came in for lunch and night-nights. My mom said that he asked where "mama" "daddy"
"Air-ren" were when he first woke up. He had a very fun day and loved being the only child for a half a day!